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From my Mom—it’s Matthew 6:25-34.

“Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more important than food, and the body more important than clothes? Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Who of you by worrying can add a single hour to his life[a]?

“And why do you worry about clothes? See how the lilies of the field grow. They do not labor or spin. Yet I tell you that not even Solomon in all his splendor was dressed like one of these. If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you, O you of little faith? So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ For the pagans run after all these things, and your heavenly Father knows that you need them. But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”

This is a passage my mother memorized fifteen years ago to help her cope. I’ve mentioned my Mom and her illness before. It appears that the cancer—her Stage IV renal cell carcinoma— is a bit worse these days, particularly in her brain, where a recent CT scan indicates it has grown some. The whole family is looking to my sister’s wedding in a week and a half—it should be a wonderful event, and we all love my sister’s fiance very much.

With sadness I note the passing of David Foster on April 15, 2008. He blogged his experiences with Stage IV renal cell carcinoma. Very moving writing, often very funny.

Obviously we’re all wishing and hoping and praying that the treatments my mother gets will help. I am hopeful, and the bible verse my Mom sent is all about not worrying.

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My Remarkable Mom

A story about her in the Roanoke Times and World News... Go Mom!

A look at calendar changes her outlook

“God is where the poor are”: Five years ago, Phyllis Crawford, 61, took a class that forced her to examine her life by looking at her calendar. She was told that “what you saw there would show where your love is.”

When she looked at her calendar, there were five tennis games and four afternoons of bridge on the schedule.

“Sometimes he [God] does call you to do fun things,” she said,

“But I thought I’d best do some volunteering.”

Crawford was no stranger to volunteer work. In the past, she had worked with her church, the Christian Women’s Club and the Child Health Investment Partnership.

“But it got so hectic,” she said. They were all worthy causes, but this time around, she needed something that spoke to her soul.

“When you serve the poor, you are serving God,” she said. “God is where the poor are.”

WORKING AT RAM: Crawford heard about Roanoke Area Ministries’ day shelter through her church, Our Lady of Nazareth.

Many of the people who pass through the shelter don’t have identification. Since homeland security measures have been implemented, the amount of documentation needed for an ID card is often all but impossible for RAM’s poor and homeless clientele to get. It can take two to four months to process an ID card.

“It’s time consuming” said Jo-Anne Woody, RAM’s administrative assistant. “But you can’t get a full- or part-time job with out it.”

Money from The Roanoke Times’ Good Neighbors Fund goes toward paying fees associated with getting the ID cards.

On her first day at the shelter, Crawford said she really wanted to cook, but RAM always has a need for people to check guests in at the front desk, and that’s where she found herself.

“The front desk was nice. I like working with people,” she said.

Crawford still tears up when she thinks about the stories she hears from the people who walk through RAM’s front doors.

IN THE KITCHEN: One day, when the cook didn’t show up, Crawford volunteered to go into the kitchen and whip up a chicken dinner for 150 people.

“Otherwise, it would have been peanut butter and jelly,” she said.

She’s been there since, volunteering by herself on Tuesdays, and with her church on Sundays.

COMMON GROUND: Crawford and her husband, Jim, an anesthesiologist, live in an upscale Roanoke County home with breathtaking views of the surrounding mountains.

But Phyllis Crawford is no stranger to the poverty she sees at RAM. As one of seven children of a truck driver in San Diego, “sometimes we didn’t have enough to eat.” She often went to school without breakfast. “But I didn’t know we were poor,” she said.

Her father “always had a second job,” and even though the family had very little, her mother didn’t hesitate to help others.

“Why do the poor always make sure that if someone needs something, they get it?” she said.

Jim Crawford became a physician the hard way—starting as a medic during the Vietnam War and becoming a registered nurse and a physician assistant along the way. While he was in medical school, the tiny trailer they lived in seemed luxurious, Phyllis Crawford said.

When Jim Crawford was offered a job in Roanoke, he took it.

“We loved it here,” Crawford said. “It was the homeyness of the people.”

A SUDDEN ILLNESS: On June 6, Crawford felt ill and was taken to the emergency room. There they discovered she had suffered a stroke, which paralyzed her left side. She amazed her doctors by recovering almost completely in four weeks.

She credits her recovery to the hundreds of people who heard about her condition and prayed for her. In her living room is a basket filled with the 200 cards and letters that she’s received so far.

“I even have the people at McDonald’s praying for me,” she said.

But when her doctors told her what had caused the stroke, the news was grim. They found tumors in her brain, her lungs and her kidneys. In June, she went through surgery to remove the bulk of the brain tumor, then followed up with a round of chemotherapy.

Despite her troubles, Crawford is not one to sit around and feel sorry for herself.

“I’m a go-getter,” she said. Within days of the operation, she went to a wedding, where she slow-danced with her husband.

She traveled to visit her family in San Diego, and she has battled the pain and nausea to take her place in RAM’s kitchen.

Since her illness, Crawford said she has been enjoying life more than ever.

“Everything is more intense. Before, I was giving 90 percent to God, now I’m giving 100 percent.”

In October, Crawford underwent an operation to remove one of her cancerous kidneys and is at home recovering from the surgery.

Previously Mom’s Magazine Article

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Mom’s Cancer News

So I mentioned yesterday, ever-so-briefly, that there was some news about the pathology report from my Mom’s kidney, which was removed. This morning my father sent me an updated and elaborated diagnosis, and more information. This may prove useful to someone, and is definitely useful to family and friends who would like an update.

First off, a link about staging Kidney Cancer from the American Cancer Society: Detailed Guide: How Is Kidney Cancer (Renal Cell Carcinoma) Staged?.

Next, here’s the deal on my Mom’s cancer, straight from my Dad this morning. My annotations are enclosed in (((triple-parentheses))):

Mom is Stage 4—based on the fact she has mets to lung and brain. Under TNM system (((American Joint Committee on Cancer (AJCC), sometimes also known as the TNM system))) she is T1B (((Tumor is larger than 4 cm but smaller than 7 cm (about 2¾ inches) and is limited to the kidney))), NX (((Regional lymph nodes cannot be assessed (information not available).))), M1 (((Distant metastasis present; includes metastasis to nonregional (not near the kidney) lymph nodes and/or to other organs (such as the lungs, bones, or brain).)))—which means the tumor was not locally invasive, that the nodes (N) are unknown, and M1 which means metastasis has occurred. Her Karnovsky score (((More about Karnovsky Performance Status))) is perfect—her overall health, and her Furhman grade (((The most widely used and most predictive grading system for renal cell cancer is the “Fuhrman Nuclear Grade”. Your pathology report should use the Fuhrman Grade. Fuhrman grade is on a scale of I-IV, where grade I carries the best prognosis and grade IV the worst. Nuclear grade means that the system is based on just the appearance of the nuclei of the cancer cells, rather than the appearance or structure of the cells as a whole. Nuclear characteristics used in the Fuhrman Grade particularly indicate how actively the cells are making protein. Source.)))—how aggressive tumor looks microscopically—number of mitotic figures, is grade 2—putting it all together survival should be 80% or better for 5 years. Of course new chemo drugs may improve on this. Dad

This is terrific news, and given my Mother’s amazing attitude, on full display back in this article, I have great hope.

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Faith and Health. Phyllis Crawford.


Our Health Magazine, about my Mom, Phyllis Crawford. This almost… almost captures how awesome she is.

From October/November 2007 in www.ourhealthswva.com (their website does not have the article).

In the article it has my Grandfather, Jesus Arthur Silva (where I get my middle name from, by the way) saying “No, Mia”—which is a typo of “No, Mija”—basically “mi hija” or my daughter.”

Other than that it was great to get this in the mail today.

If you want to read it, view the large version.

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Nephrectomy

Word from Virginia is that over the weekend my Mom had a successful nephrectomy. She has one less kidney than she had when she was born. Apparently it went well, and she’s recovering in the hospital.

I hope to get back there sometime this month.

Previously.

Update: I just got an IM from my sister that my Mom is home now, tired and in pain, but doing well. This is a big load off my mind. It’s hard to be away when big stuff is happening.

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So it’s been a few months since my Mom’s stroke and subsequent diagnosis of Stage IV Renal Cancer. She’s been through a bunch of chemotherapy, ups and downs, but generally is in great spirits and kicking butt. A few weeks ago she was out with my Dad and the rest of my family to San Diego. She was fine, except for some thrush on her tongue making it uncomfortable for her to eat and talk. That cleared up a week or so later, so, great.

Meanwhile, she was off chemo for a few weeks and had a CT scan that gave a bigger view of what’s up with the cancer. Sounds like the cancer in her lungs is less, while the kidney cancer is slightly larger and we can see it impinging on the renal vein. So… the timing is right and my Mom has been scheduled for surgery for October 6th to remove the kidney that has the tumor.

I iChatted with her and my Dad and his Army buddy Ray, plus my Sister and her Fianceé (I’m capitalizing Everybody today).

I think that covers it. Your thoughts and prayers have meant a great deal to me, and by proxy my family.

Here’s the update via my sister:


My mom is scheduled to have surgery to remove her kidney on Saturday, October 6th at 10am. We expect her to be in the hospital for approximately 4-5 days. My father is taking a week off to be with her after surgery. Daniel and I are planning on being in Roanoke at least through the holiday.

Overall, mom is doing good. She has been off chemotherapy for several weeks, recovering from side effects. The cancer in her brain is slowly diminishing since her cyberknife treatments in June and the lesions in her lungs have gotten smaller since her last treatment of Torisel in August.

Love to all,

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Mom and the Cancer

Mom finishing up walk


It’s been several weeks since I updated here about my Mom.

Several weeks ago I visited my family in Virginia, primarily to see my Mom, who recently had a stroke and was subsequently diagnosed with Stage IV Renal (Kidney) Cell Carcinoma, Cancer. She also has metastases to her brain, lung and mediastinum.

I had a great time, despite the somewhat grave circumstances. I have come into contact with several people with cancers of various kinds in the past few years, and so far they’re all still around. Frankly the diagnosis my Mom got is quite a severe one, but the predictions as to prognosis are not set in stone. There’s data that she could go years, after all, the first symptom she had was the stroke. She’s in otherwise great shape, no smoking, good fitness, walks stronger than I can, as evidenced above. She is doing great.

She was started with CyberKnife, mentioned before, and now, the current regimen is every Friday she gets chemotherapy—Torisel, to keep the cancer at bay, or even to get at diminishing the cancer. Cancer is now thought of as a chronic disease, and it’s managed as such. So far, so good, she’s getting back to “normalcy” as much as that is possible. The chemotherapy does create some fatigue for her, but while I was there she felt pretty good. Good appetite, good energy mostly. Here’s a photo of her getting chemo:

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My Dad has been 1000% supportive of everything she needs, and got housekeepers to help take some of the load off of my Mom in terms of the house. He’s a good man.

My sister and her fiancee have likewise been ultra-supportive. My Sister lives four hours away and comes down whenever she can. She was critical in the first stages of my Mom’s hospitalization, helping out at home and keeping the extended family in the loop.

And my Mom has friends, holy cow does she have friends! I was taking several calls a day, and I wasn’t even answering them all. People dropping by, dropping off flowers to say “hi,” stopping in.

So there’s lots of hope in the realm of my Mom’s illness. I try and keep in touch with email and iChats periodically. I miss them all, but everything seems to be going about as well as it could. There’s a great deal of hope, though any spare prayers you have are appreciated.

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